“I am a spine on fire. I am a collection of joints and bones and tissues that wage war. I am every step in pain. I am not thinking clearly. I am not moving quickly. But I am also not going to be quiet.” It took nearly a decade for Lisa Marie Basile’s ankylosing spondylitis to be diagnosed, a decade in which she had to navigate the usual bullshit about chronic illness—especially about being a woman with chronic illness. I’m mindful of just how atypical my experience was: I was diagnosed in less than six months.
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